Nors;2307301 said:
Any update on this story?
Hello Family and Friends,
Luke was scheduled for chemo today at 10:30. Derek and I had planned for a long day, and even drove two separate cars to the hospital to make sure Derek could leave if needed for the other children. So we get there, access the port, draw the blood, and the doctor comes in and tells us Luke’s counts are too low. Luke gets a smile on his face like a kid on Christmas morning! Derek and I just look at each other, mentally readjusting our schedules for next week thinking today would be the last of his four week session. So we’ll be back next Thursday and try again. Unfortunately after taking out the port, Luke started to get sick (we think the association thing again). As we were LEAVING, Luke threw up about four times-too late for the pan, and all over the main hallway to the waiting room. It’s really sad when he throws up and it’s technically not related to chemo medication! But he still had energy to run to the elevator and “get out of here!” (Luke’s words)
Luke was really tired, so we let him stay home from school. Later in the day his energy picked up and he played basketball with his friend Andrew outside. Then we watched the end of Zachary’s football practice. As I finish this entry, he’s very tired, so I’m going to wrap this up and put him to bed. We (excluding Luke) are disappointed in his low counts because it just delays the inevitable, but in some ways it is nice to have a relatively quiet Thursday. We’ll need to really watch him as he is more susceptible to infection. Thanks again for your thoughts and prayers. I read your notes to Luke each time they are posted. In fact he actually approached a man he didn’t know at our church (the man attends a different time session) and Luke said, “Do you know who I am?” The man said no, and Luke said, “I’m the boy with the power port. Haven’t you read about me?” I quickly intervened and explained. The poor man looked so confused. Luke certainly isn’t shy about recruiting potential fans!
We are so thankful for the angels in our lives that do so many things for our family. It does not go unnoticed. It touches our hearts and makes our family stronger. We are eternally thankful and eternally in your debt.
Love,
Shannon and Family
Luke’s note this week-
To my fans,
I didn’t have chemo because my counts were too low. They were too low because the bad guys were winning and we were losing. My mom played my song [Praan] in the car and I could feel the force. Do you believe me?
I am a big fan of the Cowboys and when the new stadium is opened next weekend [year] I will go there. I might drive or I might take an airplane. I like the whole team.
Love,
Luke Staley