Update on my kidney transplant

[PosterChild]

Excellent news 28. Hope your recovery goes as well as your procedure.

 

[Duane]

Glad to hear things worked out well. Continued best wishes to you and your donor.

 

[28bringinthewood]

Thank you so much. Last night I put a picture of me and my angel, my donor, Joyce in the members zone.

 

[Zaxor]

Thank you so much. Last night I put a picture of me and my angel, my donor, Joyce in the members zone.

YEAH!!!!!!!:laugh2:

lets get that life started again!!!!

 

[ZeroClub]

Thanks so much for continuing to share your story with us, 28!

I find it inspirational and I know that others do too.

We are all with you, of course.

 

[Route 66]

Congratulations! God is good!

 

[28bringinthewood]

Thought I would give yall a little update. My creatnine (aka crud in the blood) before transplant was 4.9. The next morning it was 1.9, yesterday morning 1.5 and this morning 1.1. My nephrologist said normal levels for an 18 year old girl is 0.8!!! I am still feeling great. Really tired because it is soooo hard for me to sleep in the hospital. I think I got 2 hours last night. I can't wait to get out of the hospital. Right now my biggest risk is infection. My immune system is basically knocked down to nothing so my body will not reject the kidney. I can not eat any fresh fruits or vegetables (all must be cooked) for at least 2 months. No fresh plants or flowers for a long time. Anytime I go out of my hospital room (or hotel room when I get there), I have to wear a mask. But.... I have a very good functioning kidney! Many prayers have been answered!

 

[PosterChild]

That's wonderful. Thanks for updating and good luck getting discharged pronto. A hospital is no place of r & r.

 

[DallasFanSince86]

Thanks for the update, glad to here you are doing great. Remember to take care of yourself.

 

[big dog cowboy]

Great news!

 

[Ben_n_austin]

We want her to get better not worse

It appears the collective objective has been achieved. The rest is to be left upon her spirit, which is apparently strong.

 

[Ben_n_austin]

Thought I would give yall a little update. My creatnine (aka crud in the blood) before transplant was 4.9. The next morning it was 1.9, yesterday morning 1.5 and this morning 1.1. My nephrologist said normal levels for an 18 year old girl is 0.8!!! I am still feeling great. Really tired because it is soooo hard for me to sleep in the hospital. I think I got 2 hours last night. I can't wait to get out of the hospital. Right now my biggest risk is infection. My immune system is basically knocked down to nothing so my body will not reject the kidney. I can not eat any fresh fruits or vegetables (all must be cooked) for at least 2 months. No fresh plants or flowers for a long time. Anytime I go out of my hospital room (or hotel room when I get there), I have to wear a mask. But.... I have a very good functioning kidney! Many prayers have been answered!

My buddy has the same kidney disease that Sean Elliott and Alonzo Mourning has. He will eventually have a kidney transplants. Reading your post has been inspiring. I think I'll forward it to him.....

Keep it up. Heal well.

 

[28bringinthewood]

My buddy has the same kidney disease that Sean Elliott and Alonzo Mourning has. He will eventually have a kidney transplants. Reading your post has been inspiring. I think I'll forward it to him.....

Keep it up. Heal well.

Please do forward to him and if he has any questions he can contact me ... when I'm feeling a little better

 

[28bringinthewood]

Hi all,



I had a pretty bad night. Couldn't sleep well. By breathing really bothers me, but I continue to use the lung exerciser thing. My temperature has fluctuated between 100.3 and normal. My donor tested positive for a cold virus in the past and I tested negative. So to prevent me from getting this virus I need a medication called Valcet, I believe. Well, the social worker is working on getting me assistance with this because after insurance pays I still owe over $550. I will need to take it for 3 months! That is besides all the other medications, hotel, food and medical bills that are mounting! The social worker did get me one weeks worth for now (thank God for great social workers!), and hoping the pharmaceutical company will assist with it. I don't see how they wouldn't. I haven't even received one disability check yet and when i do it will be under $700 per month. Juan has a great job with a great company, Robert Madden Ind., (who by the way has been WONDERFUL! I can not thank them enough for letting Juan come back to Lubbock to be with me and for everything else they are doing for us!!!), but he just celebrated his 1 year anniversary and is still on the bottom of the totem pole, so to say. Sooo... that does look good for us.

Anyways, my point is, I had a bad night and a pretty bad day too. They think it is because I need this medicine, I should get it within the hour so hopefully that will help. The great news of this email is, my husband is back here with me and it makes all the difference in the world. The great - great news is that my creatinine level is still 1.1 so Joyce's kidney is working great.



I am taking 40 of Lasix for the next 3 days, as I still have quite a bit of fluids on me. Hopefully when we get that off it will help my breathing.



Sorry this is kinda a bummer of an update, but I do feel better getting all that off my chest. They told me I would have bad days, I guess this is one of them.



Please say a prayer that the new medication they are trying to get me will come through and it will make me feel better.



Especially say a prayer for a speedy recovery for Joyce, my donor, my hero. I heard from her today and she is feeling better by the day.



We thank each and every one of you who have been helping and especially praying.

 

[PosterChild]

Hi all,



I had a pretty bad night. Couldn't sleep well. By breathing really bothers me, but I continue to use the lung exerciser thing. My temperature has fluctuated between 100.3 and normal. My donor tested positive for a cold virus in the past and I tested negative. So to prevent me from getting this virus I need a medication called Valcet, I believe. Well, the social worker is working on getting me assistance with this because after insurance pays I still owe over $550. I will need to take it for 3 months! That is besides all the other medications, hotel, food and medical bills that are mounting! The social worker did get me one weeks worth for now (thank God for great social workers!), and hoping the pharmaceutical company will assist with it. I don't see how they wouldn't. I haven't even received one disability check yet and when i do it will be under $700 per month. Juan has a great job with a great company, Robert Madden Ind., (who by the way has been WONDERFUL! I can not thank them enough for letting Juan come back to Lubbock to be with me and for everything else they are doing for us!!!), but he just celebrated his 1 year anniversary and is still on the bottom of the totem pole, so to say. Sooo... that does look good for us.

Anyways, my point is, I had a bad night and a pretty bad day too. They think it is because I need this medicine, I should get it within the hour so hopefully that will help. The great news of this email is, my husband is back here with me and it makes all the difference in the world. The great - great news is that my creatinine level is still 1.1 so Joyce's kidney is working great.



I am taking 40 of Lasix for the next 3 days, as I still have quite a bit of fluids on me. Hopefully when we get that off it will help my breathing.



Sorry this is kinda a bummer of an update, but I do feel better getting all that off my chest. They told me I would have bad days, I guess this is one of them.



Please say a prayer that the new medication they are trying to get me will come through and it will make me feel better.



Especially say a prayer for a speedy recovery for Joyce, my donor, my hero. I heard from her today and she is feeling better by the day.



We thank each and every one of you who have been helping and especially praying.

Ouch. Sorry to hear you're having a harder time. I take it you're still in the hosp? But glad to hear your donor angel has bounced back well. BTW, I think the drug you're needing is the Roche antiviral, Valcyte, and I bet they find a way to front you what you need if it's imperative. Anyway keep your spirits up and remember- 88 days till Dallas meets Cleveland in the opener.

 

[Hostile]

You're having the typical post op body yelling at you kind of day it sounds like. Surgery is still trauma to the body.

Do what they tell you and don't push yourself too hard physically yet.

 

[28bringinthewood]

Yes, you are correct on the Valcyte!!! I just got a call from them and they are going to be able to help me. We just need to get our information to them.

I am out of the hospital and in my hotel room now (since Monday). I am feeling a little better now as the day goes by.

 

[PosterChild]

Excellent news!

 

[WoodysGirl]

Yes, you are correct on the Valcyte!!! I just got a call from them and they are going to be able to help me. We just need to get our information to them.

I am out of the hospital and in my hotel room now (since Monday). I am feeling a little better now as the day goes by.

Sorry you had a bad day, today. Hope you feel tons better soon. Got alotta folks pulling for you. Take care of yourself.

 

[silverbear]

Sorry this is kinda a bummer of an update, but I do feel better getting all that off my chest. They told me I would have bad days, I guess this is one of them.

It's to be expected, I think... just roll with the punches, kid... you've made it this far, the worst is over...

No need to apologize, though, we're all along for the ride, wherever it takes us... vent any ol' time you want...