Cowboy Brian
@BrianLINY
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Kristi;3880440 said:I have Lupus and have been on massive doses of prednisone over the course of my life. I have had taken 100 mg orally and tapered down slowly and when the disease caused my paralysis they were injecting me with a doses up to 400 mg at a time to reduce swelling in spinal cord. I went into the hospital at 130 lb, within a month I was on the rehab unit and weighed 160 lb and I wasn't eating. That is how nasty that drug is!
As for the side effects -- it depends on the person. I get weight gain, puffy face, hair loss, dry skin, insomnia on the high doses, figity, can't sit still, depression, anxiety, snappy, feel hungry all the time, etc.
I think my depression from it comes from the massive hair loss and weight gain. That's hard on a girl at any age. And the teasing I endured between 10-13 was horrible on top of it. I relapsed at 15 and 21 and those two side effects are worse on my self-esteem then anything horrible the Lupus is doing to my body.
The drug is a miracle worker, but you would think for as long as it is been around and how many different diseases they use to treat things, you would think they could weed out some of the side effects.
If I can give you a piece of advice DO NOT taper too fast. I have paid the price in rushing it and/or not taking the full dose. You just end up taking it longer and prolonging the side effects.
The weight is mostly water weight and comes off with some work once you are off the medication.
Hope you get better soon and off that nasty drug!!
I'm sorry to hear about you having Lupus, I hope your doing better now. Thanks for the advice, and I was reading today that most of it is Water weight which is news I was very glad to hear. The insomnia is also getting bad, i've been getting around 4-6 hours of sleep and just playing on Cowboyszone.com on my iphone the rest of the night lol.