A shout out to CBZ and all my fellow zoners.
I haven't posted here much lately. Sadly more tragedy in the Eskimo household. Last weekend my son started having unexplained falls - very bizarre ones at first that I couldn't quite make out if they were something very serious or not as they were associated with short periods of unresponsiveness but then with very rapid recovery. At first emerg visit after first observed spell he seemed to be doing very well so wasn't too alarmed and left with promise of outpatient peds visit to be setup by Tuesday. But 3 days later spells increasing in frequency, longer and now some period of abnormal speech for awhile afterwards. Went back to emerg and they brushed us off again but stood my ground and demanded more urgent assessment. Was promised standby list for EEG next morning with two spots open as of 6:30 pm that night. That night my son had 7 spells lasting 60 to 90 seconds and with about 60 to 90 minutes of abnormal voice including 5 in his sleep. I stayed up at night and caught one of them on video to show to the neurologist.
The next morning he had a seizure at 6:45 and really wiped him out so I went back to emergency and demanded that the neurologist finally come and see him. Got his EEG first thing in the morning and went smoothly although he was a bit scared during this (meanwhile my wife was having her first postop across the street with surgeon which I couldn't attend - all okay there but still 10 more weeks non-weightbearing) and his mom wasn't available but I did the best I could. We then saw the neurologist and the boy was quite the trooper to put up with all the prodding of a 3rd emergency visit in 5 days and happily played along with the doctor's examination. After listening to us, wathcing the video, looking at the EEG he felt it was likely epilepsy probably with no underlying cause. It was unusual that he went from 0 seizures to 9 seizures in a single day so fast but that sometimes happens. He was put on a seizure pill and had only one seizure that evening and has had none the last two days so it seems to have settled them down pretty rapidly which we are very thankful for. The one last bit is to see when we feel comfortable to send him back to school, swimming classes, karate class, etc.
It's been trying times but I'm glad that things have settled down a bit. It's exhausting camping out in emerg day after day.