Update
After two months of no appetite, nausea, lethargy and weight loss, they decided on a CT Scan to see what's going on. The results couldn't have been much worse, it is everywhere, even on my hernia. And as if the cancer isn't bad enough, there is now an ulcer, a good candidate for rupture. If that happens, not anything they can do.
So, I start hospice Monday but it's not the Comfort Care part of it yet. Met with them this morning and I like them and am glad this is getting turned over to them. At least they will be quicker in response to relieving symptoms. The docs are out of it and it's all in the hospice company's hands. And I trust their hands more.
I wouldn't change anything about the path I chose and I met some very caring and genuine people along this path. I will miss them as I have stopped all treatments and will let this run its course.
I haven't been here much and do not know how much I will be able to be here because the energy level doesn't drain, it drops and all I can do is rest. This is a Groundhog Day kind of existence and I dread the beginning of another day.
BTW, they have confirmed that this cancer is the same one that took my wife, cholangiocarcinoma, a first as far as they know.