CouchCoach
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Morning Pops and all y'all. The roller coaster ride continues.
My son is picking me up for the trek to Lakeway, again but hopefully for the last time, to have this stent removed and I am nervous as hell about it. I've been told that's allowing the bile duct to drain and if that starts building Bilirubin back up in my body, I don't think I can handle that again. When they pushed this up, they thought I would be getting this next operation sooner but that can't happen before September 9 now because the robotics room in Austin isn't available until then. C3PO is but not the machine.
They are also doing a Spyglass procedure for the Oncology Surgeon to better decide how to cut me open. There is a possibility that he will have to do a much larger incision and make the hospital stay longer as well as recovery time. With how everything about this has gone so far, I am expecting the worst case scenario. He is also taking biopsies from the neighboring organs, not at the messy stage at this time.
I spoke with the Oncology Surgeon on Monday and I really like this guy a lot and he has a cool name and a great laugh. His name is Declan Fleming and I dubbed him Declan, 008, Brother of Ian. I could not believe the man has lived with that name for that long and no one ever did that before. Then again, only an idiot would risk pissing off a man about to slice him open and go poking around his innards.
Add another Doc to the list of maligning my absent gall bladder. I had no idea the word "messy" had become a clinician's technical jargon, what's next "icky'? Or gross? "Ewwwwww, your gall bladder was all icky and gross and I didn't want to touch it so I left it in".
The good news in all of this is that he agrees with the pathology board that this messy gall bladder did save my life and there is no doubt in his mind that this was headed to be the exact same cancer that took my wife. He said he's never even heard of a cancer this rare infecting non blood relatives.
Along with the biopsies and because this is taking place at UT, they will be getting on the spot pathology reports on everything and he's already prepared me that he may have to remove the entire bile duct and move the intestines up and he has performed this many times, which is why I was referred to a specialty surgeon. That does not come without it's own problems.
I'll be candid, I am fighting one of the deepest depressions I have ever been in and having a hard time seeing anything but the inside of the dark cloud and that does not represent death, it represents something far worse to me, life wishing for death. I am hoping getting this ERCP today out of the way will help but then I know I will go on "eyes and skin watch" because I know what follows when that starts to turn yellow. And my depression is manifesting itself in anger as it has the tendency to do.
My friends, I hate to complain because I should be thankful that this was discovered in time and I do not have to have that conversation with family and friends but that's not how my brain works, I wish it did. I have to let this run it's course and purge a little of that here, the only place I really can. My older son is the only one that knows anything and only because he has to be my driver for all of this.
As usual, I thank you for allowing me to purge here and the fact that you are thinking of me and care about me provides me with great comfort. I am just wallowing in a healthy dose of self pity and playing one of my "why me, O lord" cards. I don't know why I do that, always get the same response, "why not you"?
I am just waiting. Not really sure what I am waiting for but I do try to shake this everything has just gone wrong from the first day of the symptoms showing up because that shades my expectations for what I am waiting for. The doctors have all been positive.....and wrong every time so far so I have no reason to think the news I will be getting on the 9th will be any different. And I have that pathology board's disagreement on what this is and what stage it is in to feed my penchant for filling in the unknown.
Well, at least I get the fun of waking up this afternoon and finding out what parts of my body they shaved this time. Damnedest thing I've seen, it's like the nurses are all part of some weird Amish hair quilting cult. I am becoming "Patchwork Man". One more procedure like this and I will be "Hairless Chihuahua Man". I would use one of those hairless cat comparisons but they scare the bejeezus out of me. However, I might be a hot commodity for the Septuagenarian Sisters of Sex club here.
Sorry for going on so long but I am trying to deal my sense of dread away.
My son is picking me up for the trek to Lakeway, again but hopefully for the last time, to have this stent removed and I am nervous as hell about it. I've been told that's allowing the bile duct to drain and if that starts building Bilirubin back up in my body, I don't think I can handle that again. When they pushed this up, they thought I would be getting this next operation sooner but that can't happen before September 9 now because the robotics room in Austin isn't available until then. C3PO is but not the machine.
They are also doing a Spyglass procedure for the Oncology Surgeon to better decide how to cut me open. There is a possibility that he will have to do a much larger incision and make the hospital stay longer as well as recovery time. With how everything about this has gone so far, I am expecting the worst case scenario. He is also taking biopsies from the neighboring organs, not at the messy stage at this time.
I spoke with the Oncology Surgeon on Monday and I really like this guy a lot and he has a cool name and a great laugh. His name is Declan Fleming and I dubbed him Declan, 008, Brother of Ian. I could not believe the man has lived with that name for that long and no one ever did that before. Then again, only an idiot would risk pissing off a man about to slice him open and go poking around his innards.
Add another Doc to the list of maligning my absent gall bladder. I had no idea the word "messy" had become a clinician's technical jargon, what's next "icky'? Or gross? "Ewwwwww, your gall bladder was all icky and gross and I didn't want to touch it so I left it in".
The good news in all of this is that he agrees with the pathology board that this messy gall bladder did save my life and there is no doubt in his mind that this was headed to be the exact same cancer that took my wife. He said he's never even heard of a cancer this rare infecting non blood relatives.
Along with the biopsies and because this is taking place at UT, they will be getting on the spot pathology reports on everything and he's already prepared me that he may have to remove the entire bile duct and move the intestines up and he has performed this many times, which is why I was referred to a specialty surgeon. That does not come without it's own problems.
I'll be candid, I am fighting one of the deepest depressions I have ever been in and having a hard time seeing anything but the inside of the dark cloud and that does not represent death, it represents something far worse to me, life wishing for death. I am hoping getting this ERCP today out of the way will help but then I know I will go on "eyes and skin watch" because I know what follows when that starts to turn yellow. And my depression is manifesting itself in anger as it has the tendency to do.
My friends, I hate to complain because I should be thankful that this was discovered in time and I do not have to have that conversation with family and friends but that's not how my brain works, I wish it did. I have to let this run it's course and purge a little of that here, the only place I really can. My older son is the only one that knows anything and only because he has to be my driver for all of this.
As usual, I thank you for allowing me to purge here and the fact that you are thinking of me and care about me provides me with great comfort. I am just wallowing in a healthy dose of self pity and playing one of my "why me, O lord" cards. I don't know why I do that, always get the same response, "why not you"?
I am just waiting. Not really sure what I am waiting for but I do try to shake this everything has just gone wrong from the first day of the symptoms showing up because that shades my expectations for what I am waiting for. The doctors have all been positive.....and wrong every time so far so I have no reason to think the news I will be getting on the 9th will be any different. And I have that pathology board's disagreement on what this is and what stage it is in to feed my penchant for filling in the unknown.
Well, at least I get the fun of waking up this afternoon and finding out what parts of my body they shaved this time. Damnedest thing I've seen, it's like the nurses are all part of some weird Amish hair quilting cult. I am becoming "Patchwork Man". One more procedure like this and I will be "Hairless Chihuahua Man". I would use one of those hairless cat comparisons but they scare the bejeezus out of me. However, I might be a hot commodity for the Septuagenarian Sisters of Sex club here.
Sorry for going on so long but I am trying to deal my sense of dread away.