GrammaJan
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Morning Pops and I just had the most unusual thing just happen. My GI doc called me on a Sunday morning with the biopsy results from the procedure on Thursday and when I saw that number coming in, no way did I think that was going to be good news and even told him that at the end of the call. He told me he was happy to make this a better Sunday as he had been concerned about what he saw.
I was still a little fuzzy coming out of the anesthesia when he showed me the pics and his concern was apparent creating that conversation about me being a mystery, which continues according to him and the other docs. But this mystery does have a silver lining. No cancer in the biopsies. The pathologist told him with the amount of dysplasia in that area, how he doesn't have cancer and quite a bit of it is remarkable. They've never seen this before.
The downside is that the more involved surgery, the removal of the bile duct, now with a new stent in it I found out, will have to be done. The bile duct is shot to hell. This will be the most major surgery I have ever been through but I am relieved that I do not have to have that conversation with my sons and that it is not that cancer which it would have been had this turned and it was turning, just a matter of time.
I don't know if this changes the schedule of the surgery since it will be the more involved and don't know if that involves robotics and 008 is on vacation next week so I don't think I'll hear from him but I never thought I would hear from any doc on a Sunday. I've been very lucky to have had these docs, especially having Declan Fleming, 008, doing this surgery.
Now, I get to do the antsy dance. 008 assured me that we had time on this but you know what keeps coming back to me? The words "rare" and "mystery". Everything they know is based on what they know and I've been hearing this "rare" thing so much from all of them, I want this damned thing out of me sooner than later. "Rare" is good applied to steak, tuna, coins and stamps but to an organ inside you, nope, not good.
Earlier, I was having a self pity party, table for one, and now, even though the surgery is more involved, I consider myself a very lucky man. I have some great docs, and one that cares enough to call on a Sunday and that is special indeed, and the other that because he is friends with 008, I get him for this surgery. My GI guy told me if he had to have this surgery, he would wait for Dr. Fleming, if he had to, over having any other surgeon do it. He said "you are really lucky that he's taken you on as a patient".
So, my friends, I am going to stop obsessing about this and boring you with my tales of woe and "all my ailments", man, I detest that and return to boring you with my regular nonsense.
But again, thanks for the support, you have no idea how important this was to me basically go through this alone except for my older son.
GREAT NEWS COACH!!! I know exactly how you feel when you know you’ve got a great team of doctors. Indescribable the relief and sense of peace that you get knowing you’ve got a great team on your case!
Congratulations, and do keep us posted on the upcoming surgery and how everything is going.
So very happy for you. You’ve made my heart smile today.